I Was Seen – Reflections from the National Brain Tumor Walk

On June 14, 2025, I participated in the National Brain Tumor Walk—and something about that morning shifted me. I expected a day of walking, showing support, and maybe taking a few photos. But what I experienced was so much deeper.

For the first time since my diagnosis with glioblastoma, I truly felt seen.

The moment I arrived, I could sense the energy. Families, friends, and survivors were gathering not just for a cause—but as a community. People greeted one another with warmth, T-shirts proudly displayed names and photos of loved ones, and there was this quiet understanding in the air that only those who’ve walked this path can share.

It took me a while to settle into the moment. My body was there, but my mind kept drifting—thinking about the past year, about what survival really means, and about how uncertain the future feels. But as we moved through the day, those thoughts softened.

Watching giraffes slowly amble in their habitat and seeing the tuxedo-like waddle of penguins reminded me how much peace there is in the present moment. Those simple sights, shared with my family, grounded me. We laughed in the car ride there, bickered over my driving like they always do, and somehow those familiar moments made me feel more alive than ever.

One of the most powerful moments came during the group photo. Seeing the faces of fellow survivors standing shoulder to shoulder filled me with something I had not expected—pride. Not just in my own journey, but in the shared strength of everyone there. Each face held its own story, but we were united by a common thread: we are still here.

My mother, as always, found ways to give advice every chance she got. Whether it was about staying hydrated, my driving, sunscreen, or how I should have worn a different shirt, it was classic mom—and it made me smile.

There was no dramatic moment or grand epiphany that day. But what stayed with me was the feeling of being connected. To others. To my body. To time itself.

This walk reminded me that being alive is not just about surviving—it is about participating, being present, and honoring all the little messy, beautiful moments that come with it.

As we drove home, I looked out the window and thought: if I am lucky enough to keep having days like this, then I am lucky enough.

To everyone who showed up that day, thank you for walking with me. For reminding me that even when life is uncertain, community is not.

– Johnathan

— JohnVsGBM